I changed my blog description from Tysabri and MS to
starting a business after an MS diagnosis.
Since I no longer take Tysabri ti didn't seem appropiate
to talk about it on my blog.
Love the drug and love Biogen Idec but I think it is
inspiring to share how I started this business after being diagnosed
with MS and fired from my job for having MS.
When you are given lemons make lemonade and
That is what I did.
I'm proud of my accomplishments and would love to
inspire others to not give up.
Have a great day everybody !
Cathy
http://www.themsshoppe.com/
MS Awareness and Orange Ribbon items
follow us on twitter @themsshoppe or on facebook http://www.themsshoppe.om/
to see the sales first. :-)
Showing posts with label mlutiple sclerosis. Show all posts
Showing posts with label mlutiple sclerosis. Show all posts
Monday, September 26, 2011
Friday, February 27, 2009
Support Group Member Dies in Fire
Last night it was confirmed that the person who died in an apartment fire here in town was a member of my support group.
As the co-failitator of this group I am deeply saddened by this event. My co-facilitator emailed me last night and pointed out how ironic it was that I had brought the fire department to our group to teach them this very thing. How to get out in an emergency.
I am still so grateful to the Fond du Lac Fire Department who taught us so much that day. For me, who is extremely organized, even I learned alot that day. They answered so many point blank qestions we all had about our specific living conditions including mine.
There was a death of woman who lived in Pennsylvania that prompted my urge to meet with the fire department. It had a connection to our city ( without going to into to many details and
invading this other's family privacy). When I heard of this happening I immediately called the fire department and set up a meeting.
My ride for that day stood me up and left me standing on the sidewalk so I had to walk 6 blocks in March with my walker to the hospital for the meeting. I was completely exhausted but I was determined to get there despite the irresponsibility of my ride who never showed up or apologized for that matter.
When I got there I had an appointment with the local paper for an article they were doing on me and my MS. They took my picture and a picture of the support group. They must have also changed their idea for the article.
The picture of my support group was on the front page of the paper and it prompted calls from so many people with a disability and family members of people with disabilities thanking me for educating the fire department. My response then and now is still the same. They know about us. They are here to help us. But the street goes two ways and you have to educate them.
Please please please pick up the phone and tell your fire department, police department that someone in your home has a disability. They can sit down with you and offer suggestions on how to help yourself in an emergency. They are there to help you.
Please please please give someone a key to your home. Every second counts in an emergency.
Tell your neighbors you might need help in an emergency.
Remember we have MS. In a fire the heat of the fire will cause your body not to move properly, no matter how good of shape you are in.
My condolences go out to Chris's family and friends. My support group will go thru a grieving process as well, especially in this situation.
Have a great day everybody and please talk to yourfire department! Do it for me!
Cathy
www.TheMSShoppe.com
As the co-failitator of this group I am deeply saddened by this event. My co-facilitator emailed me last night and pointed out how ironic it was that I had brought the fire department to our group to teach them this very thing. How to get out in an emergency.
I am still so grateful to the Fond du Lac Fire Department who taught us so much that day. For me, who is extremely organized, even I learned alot that day. They answered so many point blank qestions we all had about our specific living conditions including mine.
There was a death of woman who lived in Pennsylvania that prompted my urge to meet with the fire department. It had a connection to our city ( without going to into to many details and
invading this other's family privacy). When I heard of this happening I immediately called the fire department and set up a meeting.
My ride for that day stood me up and left me standing on the sidewalk so I had to walk 6 blocks in March with my walker to the hospital for the meeting. I was completely exhausted but I was determined to get there despite the irresponsibility of my ride who never showed up or apologized for that matter.
When I got there I had an appointment with the local paper for an article they were doing on me and my MS. They took my picture and a picture of the support group. They must have also changed their idea for the article.
The picture of my support group was on the front page of the paper and it prompted calls from so many people with a disability and family members of people with disabilities thanking me for educating the fire department. My response then and now is still the same. They know about us. They are here to help us. But the street goes two ways and you have to educate them.
Please please please pick up the phone and tell your fire department, police department that someone in your home has a disability. They can sit down with you and offer suggestions on how to help yourself in an emergency. They are there to help you.
Please please please give someone a key to your home. Every second counts in an emergency.
Tell your neighbors you might need help in an emergency.
Remember we have MS. In a fire the heat of the fire will cause your body not to move properly, no matter how good of shape you are in.
My condolences go out to Chris's family and friends. My support group will go thru a grieving process as well, especially in this situation.
Have a great day everybody and please talk to yourfire department! Do it for me!
Cathy
www.TheMSShoppe.com
Thursday, February 26, 2009
Amazing Race' host tackles cross-country ride
Saw this article and wanted to pass it along. If Phil visits your town go out and support him. Thanks Phil for helping all of us who struggle with this disease !
"The Amazing Race" host Phil Keoghan is getting ready for an amazing ride: a multitasking bicycle trip across America.
Keoghan said he's cycling cross-country to encourage people to pursue a healthy life. He also intends to spotlight the battle against multiple sclerosis, a cause he's supported for several years.
Keoghan will set off from Los Angeles on March 28 and end in New York on May 9 _ the day before the "Amazing Race" season finale airs on CBS, the network said Wednesday.
He plans to average 100 miles a day, and said he hopes people will join in as he passes through their area.
"I feel like where we're at in the economy, the bicycle is a pretty good solution to helping people's waistlines, wallets and the environment," Keoghan said by phone from Auckland during a visit to his native New Zealand.
"This is saying to people, look, it's time to make a choice in your life. We have way too much obesity and way too many people sitting back and not getting involved in life," he said.
The ride, sponsored by nutritional retailer GNC, also is intended to support the National Multiple Sclerosis Society's Bike MS fundraising effort, with Keoghan attending rallies nationwide.
A member of Keoghan's family, a cousin, has the disease, a CBS spokesman said.
Keoghan's path will take him to more than 30 cities including Las Vegas; Denver; Lincoln, Neb.; Des Moines, Iowa; Chicago; Fort Wayne, Ind.; Columbus, Ohio; Pittsburgh; Washington; Baltimore; Philadelphia; and New York.
Cathy
www.TheMSShoppe.com
Tell a Friend!
___
"The Amazing Race" host Phil Keoghan is getting ready for an amazing ride: a multitasking bicycle trip across America.
Keoghan said he's cycling cross-country to encourage people to pursue a healthy life. He also intends to spotlight the battle against multiple sclerosis, a cause he's supported for several years.
Keoghan will set off from Los Angeles on March 28 and end in New York on May 9 _ the day before the "Amazing Race" season finale airs on CBS, the network said Wednesday.
He plans to average 100 miles a day, and said he hopes people will join in as he passes through their area.
"I feel like where we're at in the economy, the bicycle is a pretty good solution to helping people's waistlines, wallets and the environment," Keoghan said by phone from Auckland during a visit to his native New Zealand.
"This is saying to people, look, it's time to make a choice in your life. We have way too much obesity and way too many people sitting back and not getting involved in life," he said.
The ride, sponsored by nutritional retailer GNC, also is intended to support the National Multiple Sclerosis Society's Bike MS fundraising effort, with Keoghan attending rallies nationwide.
A member of Keoghan's family, a cousin, has the disease, a CBS spokesman said.
Keoghan's path will take him to more than 30 cities including Las Vegas; Denver; Lincoln, Neb.; Des Moines, Iowa; Chicago; Fort Wayne, Ind.; Columbus, Ohio; Pittsburgh; Washington; Baltimore; Philadelphia; and New York.
Cathy
www.TheMSShoppe.com
Tell a Friend!
___
Thursday, February 19, 2009
Attitude
This was emailed to me yesterday. Thought you might also enjoy it !
"The longer I live, the more I realize the impact of attitude on life. Attitude, to me, is more important than facts. It is more important than the past, than education, than money, than circumstances, than failure, than successes, than what other people think or say or do. It is more important than appearance, giftedness or skill. It will make or break a company...a church....a home. The remarkable thing is we have a choice everyday regarding the attitude we will embrace for that day. We cannot change our past....we cannot change the fact that people will act in a certain way. We cannot change the inevitable. The only thing we can do is play on the one string we have, and that is our attitude.....I am convinced that life is 10% what happens to me and 90% how I react to it. And so it is with you.......we are in charge of our Attitudes."
by
Charles Swindoll
Have a great day everybody ! It's 4 degrees here ! Can someone explain Global Warming to me?!
Cathy
www.TheMSShoppe.com
Tell a Friend !
"The longer I live, the more I realize the impact of attitude on life. Attitude, to me, is more important than facts. It is more important than the past, than education, than money, than circumstances, than failure, than successes, than what other people think or say or do. It is more important than appearance, giftedness or skill. It will make or break a company...a church....a home. The remarkable thing is we have a choice everyday regarding the attitude we will embrace for that day. We cannot change our past....we cannot change the fact that people will act in a certain way. We cannot change the inevitable. The only thing we can do is play on the one string we have, and that is our attitude.....I am convinced that life is 10% what happens to me and 90% how I react to it. And so it is with you.......we are in charge of our Attitudes."
by
Charles Swindoll
Have a great day everybody ! It's 4 degrees here ! Can someone explain Global Warming to me?!
Cathy
www.TheMSShoppe.com
Tell a Friend !
Monday, February 16, 2009
Back from the Wild Caribbean Cruise
I'm back home but the gosh darn room keeps swaying. I don't have my land legs back yet and
it is driving me crazy. I'm walking like I am drunk and I don't even have one of those umbrella
drinks in my hand! haha!
I met up with my hubby at the airport ( he went to the Miami Boat show on business). We had alot of time to kill in the airport and didn't get home til almost midnight.
I had a great time despite my pyscho roommate. I'll blog more about that later. She was a basket case.
If you haven't been on one of these cruises before they are wonderful. The Multiple Sclerosis Foundation does such a wonderful job with these trips and Royal Caribbean does a great accomdating our "special needs". And of course Alana at Fun Cruise and Travel ( who always has 14 millions things to do to take care of us) does a great job.
Every year we go to a different location. They haven't announced the next years location. I'm hoping for Hawaii. Probably never going to happen. I already put down a deposit for next year.
Cathy
www.TheMSShoppe.com
it is driving me crazy. I'm walking like I am drunk and I don't even have one of those umbrella
drinks in my hand! haha!
I met up with my hubby at the airport ( he went to the Miami Boat show on business). We had alot of time to kill in the airport and didn't get home til almost midnight.
I had a great time despite my pyscho roommate. I'll blog more about that later. She was a basket case.
If you haven't been on one of these cruises before they are wonderful. The Multiple Sclerosis Foundation does such a wonderful job with these trips and Royal Caribbean does a great accomdating our "special needs". And of course Alana at Fun Cruise and Travel ( who always has 14 millions things to do to take care of us) does a great job.
Every year we go to a different location. They haven't announced the next years location. I'm hoping for Hawaii. Probably never going to happen. I already put down a deposit for next year.
Cathy
www.TheMSShoppe.com
Wednesday, February 4, 2009
Bioness - Treatment for Foot Drop in Multiple Sclerosis
Saw this article and couldn't resist sharing it with you. I purchased this product a short time ago and have noticed some real changes in my walking.
Foot drop, for anyone who doesn't know, is a symptom of multiple sclerosis, in which it is difficult to lift the front part of your foot. Sound like a minor problem?
Try walking or driving with foot drop. In fact, foot drop can lead to a huge decrease in quality of life and an increase in disability.
In multiple sclerosis, foot drop occurs because the message from the brain to "lift" doesn't make it all the way to the foot. The foot itself is just fine, just waiting for "orders".Bioness has designed and released a device that bypasses the brain.
By putting a sensor on a shoe, the device "knows" what the foot should be doing when someone is walking. The device then signals a second device, strapped to the calf, that has the ability to stimulate the nerves and cause the muscles in the calf to "operate" the foot.
I can't endorse the product outright, but this seems like a very plausible way of dealing with foot drop and I am encouraged that there are developments in the treatment of multiple sclerosis symptoms. Devices cost around $7,000 and right now I have no idea if insurance would cover that cost.
Cathy
www.TheMSShoppe.com
Foot drop, for anyone who doesn't know, is a symptom of multiple sclerosis, in which it is difficult to lift the front part of your foot. Sound like a minor problem?
Try walking or driving with foot drop. In fact, foot drop can lead to a huge decrease in quality of life and an increase in disability.
In multiple sclerosis, foot drop occurs because the message from the brain to "lift" doesn't make it all the way to the foot. The foot itself is just fine, just waiting for "orders".Bioness has designed and released a device that bypasses the brain.
By putting a sensor on a shoe, the device "knows" what the foot should be doing when someone is walking. The device then signals a second device, strapped to the calf, that has the ability to stimulate the nerves and cause the muscles in the calf to "operate" the foot.
I can't endorse the product outright, but this seems like a very plausible way of dealing with foot drop and I am encouraged that there are developments in the treatment of multiple sclerosis symptoms. Devices cost around $7,000 and right now I have no idea if insurance would cover that cost.
Cathy
www.TheMSShoppe.com
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