Yesterday I had 2 conference calls and a sore throat. Great combination !
The first call was with the Multiple Sclerosis Foundation as part of my role as an Ambassador with them.
We talked about speaking, writing speeches, delivering speeches, etc. I stayed pretty quiet during the call because my throat was on fire. I was chugging water and cough drops just to
stay on the call.
I learned alot ( although I give speeches alot) Thanks Kasey and the rest of the group for all your ideas. This will be a fun experience being an Ambassador for them .
They are a great organization. If you haven't checked them out please go to www.msfocus.org.
If you want to read the article about the ambassador program or any other article go to MS Publications, newletters and magazines.
I am honored to be a part of this program.
The second call was for my role as a Tysabri patient advocate. Biogen Idec, the makers of Tysabri, has redesigned a website for MS er's and they wanted our opinion.
Wow ! a drug company that really wants to help their patients. I'm not sure you can say that about alot of drug companies.
I guess thats why when I was asked to share my story within their advocate program I agreed.
I am also honored to be a part of this program.
to check out their site go to www.msactivesource.com
I think their are changes to follow but I like what they have done so far.
Have a great day everybody !
Cathy
www.TheMSShoppe.com
tell a friend !
Showing posts with label Multiple Sclerosis Foundation. Show all posts
Showing posts with label Multiple Sclerosis Foundation. Show all posts
Thursday, August 13, 2009
Monday, August 3, 2009
MSFocus
I finally received my copy of MSFocus in the mail today. It's not that it was late but I was incredibly anxious to see it.
The article announcing the MSF Ambassadors was in it so it was fun to see it in print.
I did proof it and my name is spelled correctly ( inside joke, nobody ever spells my name correctly)
In addition to the announcement I am now an Ambassador for the Multiple Sclerosis Foundation my ad for my business also came out today.
In my platform for the Ambassador I reminded people to not go thru this journey of MS alone. I encouraged them to look me up on facebook (and I do mean that) so I have been friended like crazy this week.
I know first hand what it is like to go thru this alone without my family. My husband, his family and the strong friends I have all stood by me. The wimps all ran for the hills.
The biggest dissapointment was obviously my parents. How do you give birth to someone and walk away from them.
I am not a parent to anything but my adorable pups but that doesn't make sense to me.
I have come to terms with it over the years that it is their loss. I am one hell of a great person. Fun and happy and positive. A bit nuts, a bit OCD. I have a real serious side and a "I can't stop giggling side" but I am a human being with living DNA parents who want nothing to do with me and my MS.
To them I say BITE ME. DNA does not make a family. I have plenty of friends who offer me the nurturing I need. My husband and of course, his mom, who I would not have made it this far without.
Thanks mom, I love you so much !
My ad also came out today. Orders ( a good thing), catalog requests, info calls. Just had to plug in my cell because the battery was low.
Mark called earlier from work. All the news stations are hovering at this company. If you are not familiar with what is going on the company he works for is threatening to move the operations to Oklahoma. A non union shop, etc. It's been more than a little stressful here in town. They are the biggest employer here.
Personally, I am okay with the OK state. Don't get me started I'll burst into all the songs from the musical Oklahoma. It's selling my house that concerns me. It's also coordinating my Tysabri infusion so I don't miss a dose. I am extremely organized person so I think I can pull it off. Moving the business would be easy as well.
Oh, one more thing. I was also in this month's issue of New Mobility. You can read the article newmobility.com. Written by my friend Jen ( thanks a bunch) it talks about my Tysabri advocacy.
My sister in law suggested I get a publicist to handle all this publicity. LOL
Autographs are free, however donations will be accepted and donated to MSF.
Have a great sunny Vitamin D filled day !
Cathy
www.TheMSShoppe.com
Tell a friend !
The article announcing the MSF Ambassadors was in it so it was fun to see it in print.
I did proof it and my name is spelled correctly ( inside joke, nobody ever spells my name correctly)
In addition to the announcement I am now an Ambassador for the Multiple Sclerosis Foundation my ad for my business also came out today.
In my platform for the Ambassador I reminded people to not go thru this journey of MS alone. I encouraged them to look me up on facebook (and I do mean that) so I have been friended like crazy this week.
I know first hand what it is like to go thru this alone without my family. My husband, his family and the strong friends I have all stood by me. The wimps all ran for the hills.
The biggest dissapointment was obviously my parents. How do you give birth to someone and walk away from them.
I am not a parent to anything but my adorable pups but that doesn't make sense to me.
I have come to terms with it over the years that it is their loss. I am one hell of a great person. Fun and happy and positive. A bit nuts, a bit OCD. I have a real serious side and a "I can't stop giggling side" but I am a human being with living DNA parents who want nothing to do with me and my MS.
To them I say BITE ME. DNA does not make a family. I have plenty of friends who offer me the nurturing I need. My husband and of course, his mom, who I would not have made it this far without.
Thanks mom, I love you so much !
My ad also came out today. Orders ( a good thing), catalog requests, info calls. Just had to plug in my cell because the battery was low.
Mark called earlier from work. All the news stations are hovering at this company. If you are not familiar with what is going on the company he works for is threatening to move the operations to Oklahoma. A non union shop, etc. It's been more than a little stressful here in town. They are the biggest employer here.
Personally, I am okay with the OK state. Don't get me started I'll burst into all the songs from the musical Oklahoma. It's selling my house that concerns me. It's also coordinating my Tysabri infusion so I don't miss a dose. I am extremely organized person so I think I can pull it off. Moving the business would be easy as well.
Oh, one more thing. I was also in this month's issue of New Mobility. You can read the article newmobility.com. Written by my friend Jen ( thanks a bunch) it talks about my Tysabri advocacy.
My sister in law suggested I get a publicist to handle all this publicity. LOL
Autographs are free, however donations will be accepted and donated to MSF.
Have a great sunny Vitamin D filled day !
Cathy
www.TheMSShoppe.com
Tell a friend !
Thursday, May 28, 2009
MSF Ambassador
Yesterday was the first conference call for the newly appointed MSF Ambassadors.
MSF is the Multiple Sclerosis Foundation. They are a great organization who focuses on
those of us with Multiple Sclerosis.
They have the MSF Cruise for a Cause which is the event I went on to the Caribbean last February. A great time. Met lots of MSer's and made some wonderful friends.
This is a new program for MSF. There are 10 Ambassadors nationwide and our role is
really still being defined. I am looking forward to this program. I am very active in the
MS community and I believe there are so many things being overlooked for people with MS.
I have an advocacy goal which I will share with you later but I really feel like we can make a difference in the MS community.
I know, for one, my community is so non handicapped accessible so I plan to tackle that project. I will be meeting with support groups and neurologists and people with MS to find out their concerns.
I am honored to be a part of this program and I thank you MSF for giving me this opportunity.
Mark is coming home today. In case you don't have a camera attached to your computer I am dancing around the room with delight. Ooops I almost trampled on a dog !!! LOL
Only I could have a dog with two left feet.
Mark is coming home from Sweden today. I kept asking him to bring me home some swedish fish but we have come to the conclusion that Swedish fish are an American thing and I don't think the Swedes were too happy about this fish.
Yesterday was such a busy day that Mark and I have been emailing each other on our blackberry's just to keep up with each other. I got an email from him at 3 am my time that said he was still looking for a swedish fish. No, honey Swedsih Fish are jelly candies.
Please please please don't bring me home a stinky fish from Sweden.
Have a great day everybody.
Cathy
www.TheMSShoppe.com
Tell a Friend !
MSF is the Multiple Sclerosis Foundation. They are a great organization who focuses on
those of us with Multiple Sclerosis.
They have the MSF Cruise for a Cause which is the event I went on to the Caribbean last February. A great time. Met lots of MSer's and made some wonderful friends.
This is a new program for MSF. There are 10 Ambassadors nationwide and our role is
really still being defined. I am looking forward to this program. I am very active in the
MS community and I believe there are so many things being overlooked for people with MS.
I have an advocacy goal which I will share with you later but I really feel like we can make a difference in the MS community.
I know, for one, my community is so non handicapped accessible so I plan to tackle that project. I will be meeting with support groups and neurologists and people with MS to find out their concerns.
I am honored to be a part of this program and I thank you MSF for giving me this opportunity.
Mark is coming home today. In case you don't have a camera attached to your computer I am dancing around the room with delight. Ooops I almost trampled on a dog !!! LOL
Only I could have a dog with two left feet.
Mark is coming home from Sweden today. I kept asking him to bring me home some swedish fish but we have come to the conclusion that Swedish fish are an American thing and I don't think the Swedes were too happy about this fish.
Yesterday was such a busy day that Mark and I have been emailing each other on our blackberry's just to keep up with each other. I got an email from him at 3 am my time that said he was still looking for a swedish fish. No, honey Swedsih Fish are jelly candies.
Please please please don't bring me home a stinky fish from Sweden.
Have a great day everybody.
Cathy
www.TheMSShoppe.com
Tell a Friend !
Friday, March 27, 2009
What a Great Organization
Thought I would share this wonderful organization with you.
My friend works there and is so proud of what this organization does. You can tell when talking to him he loves what he does.
By William L. “Bill” Brayer
t is reported that over 2,750,000 people have MS and there are over 55,000 living in the Northwest alone, the highest incident rate anywhere.
It was Dr. Jean Martin Charcot (1825 - 1893) who first scientifically described, documented, and named the disease process, we still call Multiple Sclerosis. So named from the many scars found widely dispersed throughout the central nervous system (CNS), but are usually found to be arrayed in a symmetrical pattern near the Cerebrum's Lateral Ventricles.
MS has many symptoms and thus it is quite often difficult to diagnose as there are several other diseases that have the same symptoms. The disease is quite often triggered by a traumatic or medical experience.
Because many of the symptoms are not visible to the naked eye, MS has been often referred to as the “Invisible Disease.” As with snowflakes not being any two alike, there are virtually no two people with MS alike either, so people with MS are also sometimes referred to as having the “Snowflake Disease.”
MS is a debilitating disease that can affect any one or more parts of the body’s motoring system. It can have a gradual affect on the body or progress more rapidly depending on the symptoms.
MS does not discriminate: Men, women & children, of all ages, professional people, athletes and almost anyone can be diagnosed with the disease. One never knows when it might be him or her who is diagnosed with having it.
As of today, there is still no known cause or a cure for MS. After Millions of dollars and many years of study, medical research has yet to find a cause and develop a cure for it. Many people who have MS have waited patiently and need more than just medical help; they need financial assistance as well. That’s where you come in!
There are several MS organizations that provide various services, resources, and information for a person with MS and their families. Locally, there is the National Multiple Sclerosis Society (NMSS) & MS Helping Hands-MSHH. Headquartered in Fort Lauderdale, FL. is the Multiple Sclerosis Foundation (MSF) who provides their services and resources to people with MS all over the country with many of them being free.
Each of these MS organizations has their own special areas of assistance or agendas. MS Helping Hands-MSHH, headquarted in Edmonds, WA is the only 100% all volunteer 501 (c) (3) non-profit MS organization in the country and has the mission statement: “To create and provide services & resources that will enhance the quality of life for people with Multiple Sclerosis.”
Founded in late 1999, MS Helping Hands-MSHH has been providing services and resources to people with MS who reside in the State of Washington that consists of the “MSHH Donor Closet”, financial assistance grants, sponsors two support groups and an on location MS support group at a local care – rehab center.
The MSHH Donor Closet, also founded in 199, is a one of a kind resource that recycles durable medical (DME) and mobility (ME) items to people with MS and others for a suggested minimum donation. MSHH has no salaried staff or administrative expenses, only monthly operating expenses. After all monthly operating expenses are paid; the remaining donations are used to provide the financial assistance grants to people with MS who reside in the State of Washington. MSHH maintains a three month reserve account in order to cover any shortfalls of donations received for the recycled DME/ME items in the Donor Closet.
MSHH is neither part of, nor affiliated with any other local or national Multiple Sclerosis organization. MSHH relies 100% on the Donor Closet donations, individual personal donations, memorial donations, special fund raising benefits or events and grants from special interest groups or organizations.
The Multiple Sclerosis Foundation (MSF) headquartered in Fort Lauderdale, FL has awarded a total of $36,000 in grants since 2002 to the operation of the Donor Closet for use for people with Multiple Sclerosis residing in the State of Washington.
Boeing Employees Community Fund (BECF) awarded a $46,700 grant in 2007 for the purchase of a new Dodge Sprinter Van with a lift.
United Way of Snohomish County awarded a $5,000 grant in 2006 to be used by the Donor Closet to purchase new DME/ME items often requested but not always in Inventory.
Several who volunteer to serve on the MSHH Board of Directors, are officers of the MSHH Corporation, serve on the MSHH Advisory Committee or work at the MSHH Donor Closet, have MS.
MS Helping Hands-MSHH has been honored or recognized many times both locally and nationally, including a “Certificate of Special Congressional Recognition” in recognition of outstanding and invaluable service to the community by Congressman Jay Inslee of the US Congress.
You can make a difference in the life of someone who has Multiple Sclerosis by getting involved, either by giving some of your spare time (volunteering) or financially.
www.mshelp.org
(Note: Bill Brayer has had MS for over 57 years)
Cathy
www.TheMSShoppe.com
Tell a Friend !
My friend works there and is so proud of what this organization does. You can tell when talking to him he loves what he does.
By William L. “Bill” Brayer
t is reported that over 2,750,000 people have MS and there are over 55,000 living in the Northwest alone, the highest incident rate anywhere.
It was Dr. Jean Martin Charcot (1825 - 1893) who first scientifically described, documented, and named the disease process, we still call Multiple Sclerosis. So named from the many scars found widely dispersed throughout the central nervous system (CNS), but are usually found to be arrayed in a symmetrical pattern near the Cerebrum's Lateral Ventricles.
MS has many symptoms and thus it is quite often difficult to diagnose as there are several other diseases that have the same symptoms. The disease is quite often triggered by a traumatic or medical experience.
Because many of the symptoms are not visible to the naked eye, MS has been often referred to as the “Invisible Disease.” As with snowflakes not being any two alike, there are virtually no two people with MS alike either, so people with MS are also sometimes referred to as having the “Snowflake Disease.”
MS is a debilitating disease that can affect any one or more parts of the body’s motoring system. It can have a gradual affect on the body or progress more rapidly depending on the symptoms.
MS does not discriminate: Men, women & children, of all ages, professional people, athletes and almost anyone can be diagnosed with the disease. One never knows when it might be him or her who is diagnosed with having it.
As of today, there is still no known cause or a cure for MS. After Millions of dollars and many years of study, medical research has yet to find a cause and develop a cure for it. Many people who have MS have waited patiently and need more than just medical help; they need financial assistance as well. That’s where you come in!
There are several MS organizations that provide various services, resources, and information for a person with MS and their families. Locally, there is the National Multiple Sclerosis Society (NMSS) & MS Helping Hands-MSHH. Headquartered in Fort Lauderdale, FL. is the Multiple Sclerosis Foundation (MSF) who provides their services and resources to people with MS all over the country with many of them being free.
Each of these MS organizations has their own special areas of assistance or agendas. MS Helping Hands-MSHH, headquarted in Edmonds, WA is the only 100% all volunteer 501 (c) (3) non-profit MS organization in the country and has the mission statement: “To create and provide services & resources that will enhance the quality of life for people with Multiple Sclerosis.”
Founded in late 1999, MS Helping Hands-MSHH has been providing services and resources to people with MS who reside in the State of Washington that consists of the “MSHH Donor Closet”, financial assistance grants, sponsors two support groups and an on location MS support group at a local care – rehab center.
The MSHH Donor Closet, also founded in 199, is a one of a kind resource that recycles durable medical (DME) and mobility (ME) items to people with MS and others for a suggested minimum donation. MSHH has no salaried staff or administrative expenses, only monthly operating expenses. After all monthly operating expenses are paid; the remaining donations are used to provide the financial assistance grants to people with MS who reside in the State of Washington. MSHH maintains a three month reserve account in order to cover any shortfalls of donations received for the recycled DME/ME items in the Donor Closet.
MSHH is neither part of, nor affiliated with any other local or national Multiple Sclerosis organization. MSHH relies 100% on the Donor Closet donations, individual personal donations, memorial donations, special fund raising benefits or events and grants from special interest groups or organizations.
The Multiple Sclerosis Foundation (MSF) headquartered in Fort Lauderdale, FL has awarded a total of $36,000 in grants since 2002 to the operation of the Donor Closet for use for people with Multiple Sclerosis residing in the State of Washington.
Boeing Employees Community Fund (BECF) awarded a $46,700 grant in 2007 for the purchase of a new Dodge Sprinter Van with a lift.
United Way of Snohomish County awarded a $5,000 grant in 2006 to be used by the Donor Closet to purchase new DME/ME items often requested but not always in Inventory.
Several who volunteer to serve on the MSHH Board of Directors, are officers of the MSHH Corporation, serve on the MSHH Advisory Committee or work at the MSHH Donor Closet, have MS.
MS Helping Hands-MSHH has been honored or recognized many times both locally and nationally, including a “Certificate of Special Congressional Recognition” in recognition of outstanding and invaluable service to the community by Congressman Jay Inslee of the US Congress.
You can make a difference in the life of someone who has Multiple Sclerosis by getting involved, either by giving some of your spare time (volunteering) or financially.
www.mshelp.org
(Note: Bill Brayer has had MS for over 57 years)
Cathy
www.TheMSShoppe.com
Tell a Friend !
Wednesday, March 11, 2009
Raising money for Multiple Sclerosis
I love to share this type of story with all of you. This came from a paper in Pennsylvania.
For the second year, a local musician is spending time on a rooftop to help raise money to fight multiple sclerosis.
"I'm doing good so far," said Chris Higbee of the Chris Higbee Project from on top of the roof of the Moose Lodge 92 along Route 51 in Perryopolis on Tuesday.
At 8 p.m. Sunday, Higbee climbed onto the roof where he had a tent waiting for him as well as three nights of camping supplies.
Higbee did the same thing last year when a member of the Moose Lodge contacted Mark Vinsick, a guitarist with the Chris Higbee Project, who then contacted Higbee to see if he was interested in the rooftop marathon as part of the Ugliest Bartender Contest to help fight multiple sclerosis.
Last year, Higbee said managed to raise approximately $5,000 for the Multiple Sclerosis Foundation. He hopes to raise more this year.
Higbee was off to a good start. On Monday night between 40 and 50 people came to visit him, some driving up to four hours to make the journey. He welcomed people from as far as Beaver and even Erie.
Higbee has been gracious for those visiting fans and supporters. He talks with them and will even play some music. In fact, he brought his fiddle on the roof with him.
All donations are welcome. The first 150 people who donate $10 or more will receive a ticket to tonight's Chris Higbee Project performance at the Moose. It will be held at 8 p.m. when Higbee comes down from the rooftop.
Higbee, who's an avid camper, said he's been spending his time listening to and playing music and also writing music.
Not only is Higbee thankful for his fans, he's also happy to see his hometown community come out to support him by bringing him food and visitors to help pass the three-day camp-out.
"It's been a lot of fun," Higbee said.
Cathy
http://www.themsshoppe.com/
For the second year, a local musician is spending time on a rooftop to help raise money to fight multiple sclerosis.
"I'm doing good so far," said Chris Higbee of the Chris Higbee Project from on top of the roof of the Moose Lodge 92 along Route 51 in Perryopolis on Tuesday.
At 8 p.m. Sunday, Higbee climbed onto the roof where he had a tent waiting for him as well as three nights of camping supplies.
Higbee did the same thing last year when a member of the Moose Lodge contacted Mark Vinsick, a guitarist with the Chris Higbee Project, who then contacted Higbee to see if he was interested in the rooftop marathon as part of the Ugliest Bartender Contest to help fight multiple sclerosis.
Last year, Higbee said managed to raise approximately $5,000 for the Multiple Sclerosis Foundation. He hopes to raise more this year.
Higbee was off to a good start. On Monday night between 40 and 50 people came to visit him, some driving up to four hours to make the journey. He welcomed people from as far as Beaver and even Erie.
Higbee has been gracious for those visiting fans and supporters. He talks with them and will even play some music. In fact, he brought his fiddle on the roof with him.
All donations are welcome. The first 150 people who donate $10 or more will receive a ticket to tonight's Chris Higbee Project performance at the Moose. It will be held at 8 p.m. when Higbee comes down from the rooftop.
Higbee, who's an avid camper, said he's been spending his time listening to and playing music and also writing music.
Not only is Higbee thankful for his fans, he's also happy to see his hometown community come out to support him by bringing him food and visitors to help pass the three-day camp-out.
"It's been a lot of fun," Higbee said.
Cathy
http://www.themsshoppe.com/
Monday, February 16, 2009
Back from the Wild Caribbean Cruise
I'm back home but the gosh darn room keeps swaying. I don't have my land legs back yet and
it is driving me crazy. I'm walking like I am drunk and I don't even have one of those umbrella
drinks in my hand! haha!
I met up with my hubby at the airport ( he went to the Miami Boat show on business). We had alot of time to kill in the airport and didn't get home til almost midnight.
I had a great time despite my pyscho roommate. I'll blog more about that later. She was a basket case.
If you haven't been on one of these cruises before they are wonderful. The Multiple Sclerosis Foundation does such a wonderful job with these trips and Royal Caribbean does a great accomdating our "special needs". And of course Alana at Fun Cruise and Travel ( who always has 14 millions things to do to take care of us) does a great job.
Every year we go to a different location. They haven't announced the next years location. I'm hoping for Hawaii. Probably never going to happen. I already put down a deposit for next year.
Cathy
www.TheMSShoppe.com
it is driving me crazy. I'm walking like I am drunk and I don't even have one of those umbrella
drinks in my hand! haha!
I met up with my hubby at the airport ( he went to the Miami Boat show on business). We had alot of time to kill in the airport and didn't get home til almost midnight.
I had a great time despite my pyscho roommate. I'll blog more about that later. She was a basket case.
If you haven't been on one of these cruises before they are wonderful. The Multiple Sclerosis Foundation does such a wonderful job with these trips and Royal Caribbean does a great accomdating our "special needs". And of course Alana at Fun Cruise and Travel ( who always has 14 millions things to do to take care of us) does a great job.
Every year we go to a different location. They haven't announced the next years location. I'm hoping for Hawaii. Probably never going to happen. I already put down a deposit for next year.
Cathy
www.TheMSShoppe.com
Thursday, February 12, 2009
MSF Cruise
I am on the MSF Cruise this week and having a great time.
Meeting alot of postive people with MS ( What a concept) and of course
meeting some whiners.
There have been a alot of great seminars and events. Getting alot of
exercise walking from one end of the ship to another.
I lost my purse the first day and it was returned untouched. Wow !
I have renewed faith in humanity.
I just met a couple that was from the same town in Pennsylvania my cousin
is from. What a small world ! I was adiring her purse she just bought in
town and she came back to me so she could give it to me. I almost cried.
Random acts of kindness is what her husband said. I was blown away and
am fighting back tears as I write this. So THANK YOU Kim and Lou.
I will try to blog again but there are no guarantees. If you left me a message
on my phone, I can't get a signal very well and will call you back when I'm back
in the snow of Wisconsin. Sorry for the delay.
Have a great day Everybody. Time to have a fruity drink with an umbrella !!
Cathy
http://www.themsshoppe.com/
Meeting alot of postive people with MS ( What a concept) and of course
meeting some whiners.
There have been a alot of great seminars and events. Getting alot of
exercise walking from one end of the ship to another.
I lost my purse the first day and it was returned untouched. Wow !
I have renewed faith in humanity.
I just met a couple that was from the same town in Pennsylvania my cousin
is from. What a small world ! I was adiring her purse she just bought in
town and she came back to me so she could give it to me. I almost cried.
Random acts of kindness is what her husband said. I was blown away and
am fighting back tears as I write this. So THANK YOU Kim and Lou.
I will try to blog again but there are no guarantees. If you left me a message
on my phone, I can't get a signal very well and will call you back when I'm back
in the snow of Wisconsin. Sorry for the delay.
Have a great day Everybody. Time to have a fruity drink with an umbrella !!
Cathy
http://www.themsshoppe.com/
Friday, February 6, 2009
Multiple Sclerosis on the Sea-Let the fun begin
I am so excited about this cruise. Tonight Mark and I are spending the night
at a hotel near the airport because my flight ( which he arranged) is at 6:00 am.
I should arrive in Miami about Noon and check into my next hotel until Sunday when
the cruise leaves. I will meet my roomy Saturday night ( just after I take my muscle relaxer)
so I should be in really good shape. I will probably wake up Sunday morning and ask
who she is and why is she in my room. My muscle relaxers make me kind of loopy.
Sunday we board the ship. I will try and keep blogging during the week but I am
really focused on relaxing so the thought of seeing a computer might make me seasick. haha!
This is the MSF Multiple Sclerosis Foundation Cruise for a Cause event. They do one every year and Mark and I went on the Alaska cruise two years ago.
This year Mark is going to the Miami boat show and I will be cruising alone. This is a huge step for me to be able to do this alone. I used to travel alone on business but not when I had MS or at least not with a diagnosis of multiple sclerosis. I am up for the challenge and I figure if I am not feeling well I will be with several hundred people who get it and will understand.
I can always order room service ( which is free).
I do plan to have a few drinks with umbrella's and I have had many requests to " have a cosmo for me".
Seeing I am not much of a drinker this should be interesting. Who knows, maybe I'll walk better with a few drinks. If not, I'll just wear my shirt from my store that says " I'm not drunk I have MS"
This truly will be be Navigating the journey of MS solo. Stay tuned...
Cathy
http://www.themsshoppe.com/
Tell a Friend!
at a hotel near the airport because my flight ( which he arranged) is at 6:00 am.
I should arrive in Miami about Noon and check into my next hotel until Sunday when
the cruise leaves. I will meet my roomy Saturday night ( just after I take my muscle relaxer)
so I should be in really good shape. I will probably wake up Sunday morning and ask
who she is and why is she in my room. My muscle relaxers make me kind of loopy.
Sunday we board the ship. I will try and keep blogging during the week but I am
really focused on relaxing so the thought of seeing a computer might make me seasick. haha!
This is the MSF Multiple Sclerosis Foundation Cruise for a Cause event. They do one every year and Mark and I went on the Alaska cruise two years ago.
This year Mark is going to the Miami boat show and I will be cruising alone. This is a huge step for me to be able to do this alone. I used to travel alone on business but not when I had MS or at least not with a diagnosis of multiple sclerosis. I am up for the challenge and I figure if I am not feeling well I will be with several hundred people who get it and will understand.
I can always order room service ( which is free).
I do plan to have a few drinks with umbrella's and I have had many requests to " have a cosmo for me".
Seeing I am not much of a drinker this should be interesting. Who knows, maybe I'll walk better with a few drinks. If not, I'll just wear my shirt from my store that says " I'm not drunk I have MS"
This truly will be be Navigating the journey of MS solo. Stay tuned...
Cathy
http://www.themsshoppe.com/
Tell a Friend!
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