Tuesday, August 31, 2010

good morning everyone

Had a great nights sleep. For the past month or so I've been living on 2-3
hours a nights so I love love love when I have a great night and I wake up feeling

Got a great email today about an wonderful opportunity with NMSS.
Had another great email from aneager crafter. ( some of my crafters
have turned into flakes) so I'm very excited about this email.

Business is going well and I have to admit it is keeping me sane during
this medical stuff I have been going thru. My customers are the best
and I appreciate your kind words and patience in getting orders  out.
Although my husband tells me I put way too much pressure on myself
getting orders out so quickly.
Some people never knew I was sick because the flow was never interrupted.
I tried very hard to keep on top of everything.
I think I'll find my boo boo's when I do inventory and realize I did a bad
job and am out of stock of a few things. haha

Had a very wierd phone call last night. Too early to tell what that was about
but Mark thinks they want us to give them money. I love when you dont hear
from people except when they need something.
Have I not been sick the past month? Where were you then?

Please stop by and visit our website when you have a chance. Lots of new products and
don't forget the fundraiser for NMSS.  The Orange is the new Pink tshirt is the fundraiser
available in both an orange shirt and a pink one.

Love you all and thanks so much for your support while I wasn't feeling well.

Have a great day everybody


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Sunday, August 29, 2010

Health update

I am finally feeling better although I have been hit hard by fatigue.

I haven't had a fatigue problem since I went on Tysabri so it
kind of caught me offguard.

I also feel the stress caused by my family is not helping my
MS at all.

It has been 8 days since my husband called my parents asking for  their support.

8 days since they said NO. 8 days of heartbreak for me.

The last time I spoke with my sister was 2 days before her deadbeat husband was
coming home from his one month vacation in California. Paid for by his mommy.
He is going back to California Sept 1 for 3 months. Mommy is giving him a car.

He hasn't worked in over a year and hasn't looked for a job to support his
wife and child. They lost their home and their cars and still he milks off the
State of Arizona.  $400 a month in food stamps you guys are  paying for. Ouch !

Free health care to somebody who has never paid into the system. Ouch !

He was just diagnosed as diabetic and yet eats ice cream for lunch and weighs 400 lbs. Ouch !

Isn't life fair? My SSDI gets taxed. Did ya know that? Yes, I pay taxes on my disability.
And to make matters worse they tax it at my husbands rate. Ouch !
I pay my own health care, my neighbors mortgage and if we have money left over, we eat !

Got the bills for my medical situation on Friday so I got to look at them all weekend.
Should be fun figuring this whole mess out. Have some beautiful flowers on my kitchen
table from the Riechers clan. Thanks guys, I love you !

Mark and I cooked all weekend. Ok, I sat at the kitchen table and chopped because I didn't
have the enregy to stand but all of our projects worked out wonderfully except the pudding.
Note to everybody, Rice milk does not work in Jello pudding mix. It was more of a smoothie made of water. Who knew? Trying to use things  from the pantry.

Mark picked up tomatillo's at the farmers market so we expereimented. Wow was that good.
Our new favorite veggie or is it a fruit?

Have a great day everybody.

Thank you all for your support and your kind words. Waiting for the results of the medical tests
and it might not be til Ocober we find anything out.


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Sunday, August 22, 2010

DNA downers

This has indeed been an incredible weekend. Saturday I finally started to feel better.
Not great but not worse so in my book that's better.
I don't know maybe it's girl logic. haha !

The past few weeks have been scary. Mark has been by my side the entire time (even
when I wasn't very nice) I've been a terrible patient because I have never felt so awful. My "high pain tolerance" I always claim to have has either left home or never really erxisted. 
I thank you, my faithful friends, for being there for me and encouraging me. I don't ever want to go thru
this again or have anyone else go thru it.
The next few weeks will be just as scary as we wait for the results of several tests and then make decisions accordingly.
My parents claim they never got my email I was sick. Ha ??? Did you think my MS was going to go away?
There is no cure,

In the past month Mark and I have been planning a trip to Cali and we thought of a way to surprise my parents. We were even going to pick up the tab for their transportation because they "promised me " in June the would support me and my MS. . What the heck was I thinking?

Saturday my husband called my parents and asked them ( or told them ) they need to support their daughter or lose me.
And surprise, surprise guess what their reaction was. They walked away AGAIN. Can't do it. Can't support

What a big giant piece of sh*t they are. My sibllings aren't much better. They are all members of the freeloaders and mooch club. What can I get for free.
Well, this is your lucky day, my F'd up family because today you should learn a lesson in how to be a family
And it's free ! I'm teaching it. For free !!!
My husband was shocked at their respnse but I unfortunately was not. Been there done that My whole damn life.
Grow up you lousy excuse for breathing humans, Grow up !

I'll gett thru this medical crisis without you and every one in the future.  And you kno wwhat DNA does not make a family. So stop calling me your daughter, or sister. You don't deserve me in your life.

Have a great day everybody !


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Saturday, August 21, 2010

Extreme Home Makeover

Yesterday was the big reveal of the newly built Extreme Home Makeover home
built just a short distance away.
This is actually the 2nd build here in Wisconsin in the past few years.

Kind of fun to know someone's life will be changing in a matter of a week.

Also fun to see the updates on the news and how a community hurting with this
economy was still ble tostep up to the plate and helpthis family with an extra purchase of a piano.

Can't wait to see it on TV. Derek and Anna from Dancing with the Stars were on set.

Have a great Day everybody.


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Monday, August 16, 2010

Day 5

This should be day 5 of this horbbile torture treatment.

I have been awake for hours and I'm already bored with facebook.
I thought I could get caught up on some stuff but realized I am not very coherent.

We can all laugh tomorrow at how bad this post is.

Anyway, thank you all your thoughts and prayers thru this ordeal. I didn't even think I
would make it thru day 1 let alone day 5. But I did it/ I really did it.

It is with this special support team we MS er's have formed that get us thru this kind of stuff.
As many of you know my family walked away from me and my MS. This time I really thought would be different but I was again wrong.

I had Mark pick up some cookies for me to bring to my nurses tomorrow. They never get enough

They have also seen me go from "perky Cathy" to the sobbing idiot I was yesterday. I don't know
how they do it but I hope they know how grateful I am.
Speaking of cookies, I'm hungry but I'm too tired to go downstairs. They would probably
notice one was missing. haha !

Have a great day eerybody. My goal today is to pass this on. You have done for me what I needed so badly and I intend to do the same for someone else. Now if I could get this dam room to stop spinning.


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Saturday, August 14, 2010

Day 3

Here's me and my Multiple Smiles MS Hug bear (available on http://www.themsshoppe.com/)
He's keeping me company because he is so huggable.
I can't believe how well I am doing on this stuff. Not to say I feel
good by any
stretch of the imagination.
Got up at 3:00 am this morning hungry. I ate a granola bar and went on facebook and
tried to play games.
I'm not having hallucinations as I have had in the past but still feeling pretty awful.

Nauseous and  hungry at the same time. I have no appetite. Food tastes metallic and
stale. I'm trying.

I am sleeping some but I feel like a truck ran me over and is dragging me down the highway.

Have orders to process and a ton of paperwork to do but taking it slowly.

This laptop does alot but not as much as my mainframe. I'll do what I can. I know my
customers will understand. Mark is running himself ragged trying to do everything
else including taking care of the dogs.
Wish I was at the PGA Game. Its so close but yet so unreachable.

have a great day everybody. Enjoy a great meal for me. Everything tastes awful to me.


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Wednesday, August 11, 2010

roids tomorrow eek !

Tomorrow I begin a five day IV steroid program. Something I am not looking forward to.

The last time I was on steroids I had hallucinations. While sitting on the couch I fell off because
I was ducking the lamp which was flying thru the air.
I know funny now but not at the time.

Thank you to all of you who shared your similar stories with me. Thank you all for being there for me.

As we all kow, my family has run for their lives AGAIN. So sad, I really thought this time
was different. But so many of you warned me it may not be.
Ok, you were right and I was wrong. I just so wanted to believe they would finally be
there for me.
So I am going into this event tomorrow scared and my family cant even call me.

I'll post how I'm doing tomorrow.  I know you feel my pain. One MSer to another.

Have a great day everybody.


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Monday, August 9, 2010

Tysabri day but for how long?

Last week when I was at my new neuro's office I was asked if I wanted to become a part of a research study and was tested for the JC Virus.
I'm pretty sure it will come back positive as I have had funky blood test results my whole life.

Anyway, because I have had about 47 tysabri infusions my chance of PML is greater if I test positive.

It will take 4 to 6 weeks to get the results so in the meantime  I will continue with my infusions.
today was my tysabri day and I have to admit I always feel better after my fix.

I'll keep you posted on the results. This will be a crazy week. Thank you all for your encouraging words on facebook. 
I'll get thru it.Of course it is much better to know you ladies are all behind me.


Thursday, August 5, 2010

Visit to a new neuro

Yesterday my husband and I went to a new neuro. He is actually the neuro I have spoken with many times before so I know him well and he knows alot about my history so I wasn't nervous about meeting him.

I was however nervous about his response to my condition and how it has worsened over the past year.
He's not a "beat around the bush" kind of guy so I knew he would have something to say.

For the past year my previous neuro just seems to have given up on me. It took him 8 days to return my call. I don't call often but wierd things were happening and I was concerned.
Mid conversation my previous neuro said " I've got to go" and hung up. WTF? Did he really hang up on me?

Normally I would have gotten upset but I took it as a sign for me to move on. It's not the first time he has acted or said something inappopiate. Two years ago when my dog was so sick I told him at my appt that I hadn't slept in weeks because I was up all night with my sick dog. He told me to "get rid of the dog". We had to put her down just a short time later. His words still haunt me.

Anyway, I realized a while ago it was time for me to stand up for myself and change neuro's. So I did.

My nervousness yesterday was that I was knew my neuro was neglecting me and I was not getting the care I needed or deserved for that matter. But I didn't realize or maybe wouldn't admit (denial) that my condition had worsened. Now I am concerend the damage is done and I will just get worse.

I am bordering on depression this week. Its that time of the month and that's not helping my mood.

Next week we have tests and stuff I have to undergo. I will keep you posted.

I know I am strong ( as many of you have reminded me today) when I reached out to my blogging friends and once again they were there.

Thank you ladies. You are the best. I am crying as I write this thinking of all the situations we have gotten each other thru. Thisi tme its me that needs thesupport and as I knew you would lift my spirits.

It's gonna be a rollercoaster for me the next few weeks. And of course, where is my "supportive family? If you find them let them know they dropped the ball once again. :-(

Have a great day everybody ~

Cathy & the wonder dogs-Ripley and Noelle ( who give the best darn hugs when you need them)

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