Thursday, September 10, 2009

speech tonight

I'm giving my speech tonight as a patient advocate for Biogen Idec, the makers of Tysabri.

Mark is leaving work early and I have to feed the dogs really early but we'll have a nice
long drive together.

I don't know how he can come from Europe and be up and running ( literally) first thing the next morning.

I just did my workout and I feel better having had a good nights sleep finally.
Although I did have crazy dreams about them arresting this lunatic so that part
was good. haha

It still feels like it is going to rain. My body is aching a bit. Great day to give a speech
on how wonderful the meds are I am on.

Mark will drop everything else at the post office today. It was quite the week and alot of orders went out the door but this is the last batch. Sorry, folks I was moving kind of slow this week and then there was the holiday. sheesh !

The fireworks convention is in town again. I had completely forgotten about it. We are probably the only place in the US who celebrates the worst day in this nations history by setting off fireworks. It is appalling.

Sept. 11 is always a really hard day/ week for me. This is the first time I will be leaving the house on that day since it happened. Big big step for me. Ok, so I going to be with my friend who will be doing my nails. It is a step. But usually I am paralyzed and can't leave the house. I seemed to be glued to the TV.

Have a great day everybody


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Sherri said...


Will there be a question and answer period with Biogen? If so, can you ask them why they quit publishing a weekly report on the number of patients with PML? I think it's very important for people like you and me to have that access via the Internet. Now me must rely on pharmaceutical reps to communicate that information to our doctors, which I don't like. I would like to see at least a monthly update from them. What do you think?

Anyway, good luck with your speech tonight! :)

Cathy said...

Sherri,I will certainly ask ( if I remember, it is an MS thing) If I forget I will ask Biogen directly as I have many contacts there.

Libby said...

i'm sure the speech went great! i just wish i still drove...i'll be there someday when i get my license again!

Cathy said...

Libby we can go for our driver's licenses together. I am determined to get mine back. LOL