You know I just love these stories !
Good work Akron !
The campaign to renovate the home of multiple sclerosis patient Sue Lang — who works as a safety communication technician alongside 911 operators for the Akron Police Department — is going forward at a pretty good clip.
Lang's home has not only fallen into a state of disrepair, but it's also not handicapped accessible. She uses a wheelchair and needs the house to be in order to maintain her independence.
Akron Police detective Mildred ''Millie'' Morris and others went to the rescue.
''We had about 20 volunteers attack the house,'' Morris said of the Herculean event that transpired on a recent Sunday at Lang's home. ''We knocked out all of the ceilings, old cabinets and gutted the bathroom. . . .
''On Friday, volunteers from Home Depot came out to install insulation and drywall for the ceilings. . . .
''We hope to install kitchen cabinets by April 3. Next we will plan out the bath and type of flooring.''
Several of those volunteering for this do-the-right-thing, life-altering cause for Sue Lang include students from Akron's St. Vincent-St. Mary High School, Lang's alma mater.
Juniors on the football team, Brian Cresswell Jr. and Bryant Ausperk, have donated muscle to the cause and are planning to hold a Spirit Day at school to help raise funds for materials.
Ausperk even got his father involved; Skip Ausperk, owner of Valley Trucking & Recycling in Peninsula, donated two Dumpsters to collect debris. Cresswell's father is a member of the Akron Police Department and is doing his part.
As far as the safety forces' involvement in the project, Morris reports that ''So far police are holding the line and are out in front! ''
Cathy
www.TheMSShoppe.com
Monday, March 30, 2009
Sunday, March 29, 2009
Tiger's Back
Wow ! What an exciting golf tourney this afternoon.
It was very touch and go but Tiger did it.
I can't even imagine the pressure he has been under since he returned to golfing after knee surgery.
Let's face it, he is the best. And although Mr. Jack Nicklaus has been a fav for a long time, Tiger
is second to no one.
Jack Nicklaus aka the Golden Bear has been a long time fav for me. If you haven't already figured it out my dear Goldie was named after him. When we got her she was this little ball of gold fluff but she made this little purring sound I dubbed a roar so we named her Golden Bear.
Now that I have given up on golf ( or maybe it gave up on me) Multiple Sclerosis will do that to you. I do enjoy watching it on TV.
Tiger is an exceptional player and a great role model. Congrat ! Mr. Woods, you deserve this win and we ( the fans) lve to see you smile when you win.
Cathy
www.TheMSShoppe.com
It was very touch and go but Tiger did it.
I can't even imagine the pressure he has been under since he returned to golfing after knee surgery.
Let's face it, he is the best. And although Mr. Jack Nicklaus has been a fav for a long time, Tiger
is second to no one.
Jack Nicklaus aka the Golden Bear has been a long time fav for me. If you haven't already figured it out my dear Goldie was named after him. When we got her she was this little ball of gold fluff but she made this little purring sound I dubbed a roar so we named her Golden Bear.
Now that I have given up on golf ( or maybe it gave up on me) Multiple Sclerosis will do that to you. I do enjoy watching it on TV.
Tiger is an exceptional player and a great role model. Congrat ! Mr. Woods, you deserve this win and we ( the fans) lve to see you smile when you win.
Cathy
www.TheMSShoppe.com
Friday, March 27, 2009
What a Great Organization
Thought I would share this wonderful organization with you.
My friend works there and is so proud of what this organization does. You can tell when talking to him he loves what he does.
By William L. “Bill” Brayer
t is reported that over 2,750,000 people have MS and there are over 55,000 living in the Northwest alone, the highest incident rate anywhere.
It was Dr. Jean Martin Charcot (1825 - 1893) who first scientifically described, documented, and named the disease process, we still call Multiple Sclerosis. So named from the many scars found widely dispersed throughout the central nervous system (CNS), but are usually found to be arrayed in a symmetrical pattern near the Cerebrum's Lateral Ventricles.
MS has many symptoms and thus it is quite often difficult to diagnose as there are several other diseases that have the same symptoms. The disease is quite often triggered by a traumatic or medical experience.
Because many of the symptoms are not visible to the naked eye, MS has been often referred to as the “Invisible Disease.” As with snowflakes not being any two alike, there are virtually no two people with MS alike either, so people with MS are also sometimes referred to as having the “Snowflake Disease.”
MS is a debilitating disease that can affect any one or more parts of the body’s motoring system. It can have a gradual affect on the body or progress more rapidly depending on the symptoms.
MS does not discriminate: Men, women & children, of all ages, professional people, athletes and almost anyone can be diagnosed with the disease. One never knows when it might be him or her who is diagnosed with having it.
As of today, there is still no known cause or a cure for MS. After Millions of dollars and many years of study, medical research has yet to find a cause and develop a cure for it. Many people who have MS have waited patiently and need more than just medical help; they need financial assistance as well. That’s where you come in!
There are several MS organizations that provide various services, resources, and information for a person with MS and their families. Locally, there is the National Multiple Sclerosis Society (NMSS) & MS Helping Hands-MSHH. Headquartered in Fort Lauderdale, FL. is the Multiple Sclerosis Foundation (MSF) who provides their services and resources to people with MS all over the country with many of them being free.
Each of these MS organizations has their own special areas of assistance or agendas. MS Helping Hands-MSHH, headquarted in Edmonds, WA is the only 100% all volunteer 501 (c) (3) non-profit MS organization in the country and has the mission statement: “To create and provide services & resources that will enhance the quality of life for people with Multiple Sclerosis.”
Founded in late 1999, MS Helping Hands-MSHH has been providing services and resources to people with MS who reside in the State of Washington that consists of the “MSHH Donor Closet”, financial assistance grants, sponsors two support groups and an on location MS support group at a local care – rehab center.
The MSHH Donor Closet, also founded in 199, is a one of a kind resource that recycles durable medical (DME) and mobility (ME) items to people with MS and others for a suggested minimum donation. MSHH has no salaried staff or administrative expenses, only monthly operating expenses. After all monthly operating expenses are paid; the remaining donations are used to provide the financial assistance grants to people with MS who reside in the State of Washington. MSHH maintains a three month reserve account in order to cover any shortfalls of donations received for the recycled DME/ME items in the Donor Closet.
MSHH is neither part of, nor affiliated with any other local or national Multiple Sclerosis organization. MSHH relies 100% on the Donor Closet donations, individual personal donations, memorial donations, special fund raising benefits or events and grants from special interest groups or organizations.
The Multiple Sclerosis Foundation (MSF) headquartered in Fort Lauderdale, FL has awarded a total of $36,000 in grants since 2002 to the operation of the Donor Closet for use for people with Multiple Sclerosis residing in the State of Washington.
Boeing Employees Community Fund (BECF) awarded a $46,700 grant in 2007 for the purchase of a new Dodge Sprinter Van with a lift.
United Way of Snohomish County awarded a $5,000 grant in 2006 to be used by the Donor Closet to purchase new DME/ME items often requested but not always in Inventory.
Several who volunteer to serve on the MSHH Board of Directors, are officers of the MSHH Corporation, serve on the MSHH Advisory Committee or work at the MSHH Donor Closet, have MS.
MS Helping Hands-MSHH has been honored or recognized many times both locally and nationally, including a “Certificate of Special Congressional Recognition” in recognition of outstanding and invaluable service to the community by Congressman Jay Inslee of the US Congress.
You can make a difference in the life of someone who has Multiple Sclerosis by getting involved, either by giving some of your spare time (volunteering) or financially.
www.mshelp.org
(Note: Bill Brayer has had MS for over 57 years)
Cathy
www.TheMSShoppe.com
Tell a Friend !
My friend works there and is so proud of what this organization does. You can tell when talking to him he loves what he does.
By William L. “Bill” Brayer
t is reported that over 2,750,000 people have MS and there are over 55,000 living in the Northwest alone, the highest incident rate anywhere.
It was Dr. Jean Martin Charcot (1825 - 1893) who first scientifically described, documented, and named the disease process, we still call Multiple Sclerosis. So named from the many scars found widely dispersed throughout the central nervous system (CNS), but are usually found to be arrayed in a symmetrical pattern near the Cerebrum's Lateral Ventricles.
MS has many symptoms and thus it is quite often difficult to diagnose as there are several other diseases that have the same symptoms. The disease is quite often triggered by a traumatic or medical experience.
Because many of the symptoms are not visible to the naked eye, MS has been often referred to as the “Invisible Disease.” As with snowflakes not being any two alike, there are virtually no two people with MS alike either, so people with MS are also sometimes referred to as having the “Snowflake Disease.”
MS is a debilitating disease that can affect any one or more parts of the body’s motoring system. It can have a gradual affect on the body or progress more rapidly depending on the symptoms.
MS does not discriminate: Men, women & children, of all ages, professional people, athletes and almost anyone can be diagnosed with the disease. One never knows when it might be him or her who is diagnosed with having it.
As of today, there is still no known cause or a cure for MS. After Millions of dollars and many years of study, medical research has yet to find a cause and develop a cure for it. Many people who have MS have waited patiently and need more than just medical help; they need financial assistance as well. That’s where you come in!
There are several MS organizations that provide various services, resources, and information for a person with MS and their families. Locally, there is the National Multiple Sclerosis Society (NMSS) & MS Helping Hands-MSHH. Headquartered in Fort Lauderdale, FL. is the Multiple Sclerosis Foundation (MSF) who provides their services and resources to people with MS all over the country with many of them being free.
Each of these MS organizations has their own special areas of assistance or agendas. MS Helping Hands-MSHH, headquarted in Edmonds, WA is the only 100% all volunteer 501 (c) (3) non-profit MS organization in the country and has the mission statement: “To create and provide services & resources that will enhance the quality of life for people with Multiple Sclerosis.”
Founded in late 1999, MS Helping Hands-MSHH has been providing services and resources to people with MS who reside in the State of Washington that consists of the “MSHH Donor Closet”, financial assistance grants, sponsors two support groups and an on location MS support group at a local care – rehab center.
The MSHH Donor Closet, also founded in 199, is a one of a kind resource that recycles durable medical (DME) and mobility (ME) items to people with MS and others for a suggested minimum donation. MSHH has no salaried staff or administrative expenses, only monthly operating expenses. After all monthly operating expenses are paid; the remaining donations are used to provide the financial assistance grants to people with MS who reside in the State of Washington. MSHH maintains a three month reserve account in order to cover any shortfalls of donations received for the recycled DME/ME items in the Donor Closet.
MSHH is neither part of, nor affiliated with any other local or national Multiple Sclerosis organization. MSHH relies 100% on the Donor Closet donations, individual personal donations, memorial donations, special fund raising benefits or events and grants from special interest groups or organizations.
The Multiple Sclerosis Foundation (MSF) headquartered in Fort Lauderdale, FL has awarded a total of $36,000 in grants since 2002 to the operation of the Donor Closet for use for people with Multiple Sclerosis residing in the State of Washington.
Boeing Employees Community Fund (BECF) awarded a $46,700 grant in 2007 for the purchase of a new Dodge Sprinter Van with a lift.
United Way of Snohomish County awarded a $5,000 grant in 2006 to be used by the Donor Closet to purchase new DME/ME items often requested but not always in Inventory.
Several who volunteer to serve on the MSHH Board of Directors, are officers of the MSHH Corporation, serve on the MSHH Advisory Committee or work at the MSHH Donor Closet, have MS.
MS Helping Hands-MSHH has been honored or recognized many times both locally and nationally, including a “Certificate of Special Congressional Recognition” in recognition of outstanding and invaluable service to the community by Congressman Jay Inslee of the US Congress.
You can make a difference in the life of someone who has Multiple Sclerosis by getting involved, either by giving some of your spare time (volunteering) or financially.
www.mshelp.org
(Note: Bill Brayer has had MS for over 57 years)
Cathy
www.TheMSShoppe.com
Tell a Friend !
Wednesday, March 25, 2009
Climbing to the Top of the World with Multiple Sclerosis
You know how I love to share stories like this. This is from a Wisconsin newspaper.
It's the last mountain after a lifetime of obstacles: Some that are actual mountains, another that's an incurable disease.
Lori Schneider is hoping to become the first woman with multiple sclerosis to ever defeat Mt. Everest.
She's seen the world from some of its highest places—six of the "Seven Summits"
"What that means is I’m trying to climb the highest peaks on each continent,” Schneider says. “I've finished six continents already. I just got back from Antarctica."
But, Schneider saved the best for last.
"I’m on my way to complete the grand daddy of them all—Mt. Everest in Nepal, Asia at 29,035 feet," she says.
It’s a trip that will take two months time. It’s one she's spent many months preparing for right in her Bayfield backyard. Schneider made daily hikes up a local ski hill with a 50 pound backpack. She propped a ladder against a tree to practice in her boots, then placed it across bales to prep for the large crevasses on the mountain. Her intense workouts can almost make you forget Lori has MS.
"When I got diagnosed back ten years ago I panicked," Schneider says.
She says she woke up one morning and half her body was numb and Lori herself felt numb knowing multiple sclerosis would affect her central nervous system. It commonly affects balance, walking and coordination.
"I went into fear mode. I left my life. I ran away," Schneider says.
But, she ended up running toward her favorite places—the mountains.
"Through the mountain climbing, I’ve really taken back my life and my power," Schneider says.
"She's following through with her dreams and really she's someone to look up to for sure with her message to others to move beyond their limitations," Jim Ramsdell says.
Schneider says her goal is to "help people to realize that their life isn't over when they're diagnosed with something like MS."
It’s just a little more inspiration for a woman reaching for the top of the world, determined to control her body, her life and her fate.
Lori leaves Friday for Nepal. Her group hopes to reach the summit by mid May.
As for how MS actually affects her climbing ability, Lori says it doesn't. She says her MS has been symptom free for several years and she thinks she's stronger now than when she was first diagnosed.
Cathy
www.TheMSShoppe.com
Tell a Friend !
It's the last mountain after a lifetime of obstacles: Some that are actual mountains, another that's an incurable disease.
Lori Schneider is hoping to become the first woman with multiple sclerosis to ever defeat Mt. Everest.
She's seen the world from some of its highest places—six of the "Seven Summits"
"What that means is I’m trying to climb the highest peaks on each continent,” Schneider says. “I've finished six continents already. I just got back from Antarctica."
But, Schneider saved the best for last.
"I’m on my way to complete the grand daddy of them all—Mt. Everest in Nepal, Asia at 29,035 feet," she says.
It’s a trip that will take two months time. It’s one she's spent many months preparing for right in her Bayfield backyard. Schneider made daily hikes up a local ski hill with a 50 pound backpack. She propped a ladder against a tree to practice in her boots, then placed it across bales to prep for the large crevasses on the mountain. Her intense workouts can almost make you forget Lori has MS.
"When I got diagnosed back ten years ago I panicked," Schneider says.
She says she woke up one morning and half her body was numb and Lori herself felt numb knowing multiple sclerosis would affect her central nervous system. It commonly affects balance, walking and coordination.
"I went into fear mode. I left my life. I ran away," Schneider says.
But, she ended up running toward her favorite places—the mountains.
"Through the mountain climbing, I’ve really taken back my life and my power," Schneider says.
"She's following through with her dreams and really she's someone to look up to for sure with her message to others to move beyond their limitations," Jim Ramsdell says.
Schneider says her goal is to "help people to realize that their life isn't over when they're diagnosed with something like MS."
It’s just a little more inspiration for a woman reaching for the top of the world, determined to control her body, her life and her fate.
Lori leaves Friday for Nepal. Her group hopes to reach the summit by mid May.
As for how MS actually affects her climbing ability, Lori says it doesn't. She says her MS has been symptom free for several years and she thinks she's stronger now than when she was first diagnosed.
Cathy
www.TheMSShoppe.com
Tell a Friend !
Tuesday, March 24, 2009
soggy doggy update
I just got home and it wasn't as bad as I thought it might be.
Both dogs greeted me at the door wet and soggy which means they just stood on the back porch and barked.
I had to turn my back when I walked in because they looked so funny and so darn cute.
After a quick towel dry and a spin thru the fluffer ( that's a game we play with the towel)
I combed them both out and look fine. Sheeesh ! I am so relieved.
My nails look great by the way. I'm just waiting for Mark to call to say goodnight at 3:00 in the afternoon.
It's after 10 pm there.
Goodnight Mark !
Cathy
www.TheMSShoppe.com
Tell a friend !
Both dogs greeted me at the door wet and soggy which means they just stood on the back porch and barked.
I had to turn my back when I walked in because they looked so funny and so darn cute.
After a quick towel dry and a spin thru the fluffer ( that's a game we play with the towel)
I combed them both out and look fine. Sheeesh ! I am so relieved.
My nails look great by the way. I'm just waiting for Mark to call to say goodnight at 3:00 in the afternoon.
It's after 10 pm there.
Goodnight Mark !
Cathy
www.TheMSShoppe.com
Tell a friend !
It's raining and you know what that means
It been raining all night and is still raining and you know what that means.
Lets do the math...One dog( who likes to get dirty) plus one white kitchen floor ( that already has paw prints on it) plus no supervision equals ( oh no I can't even think about it) a total mess. Mud puppy as my husband has nicknamed him.
What a pessimist or is this a realists? Whatever the case I am worried. I have to go out for a bit and I'm afraid of what I'll come home to. Mark is in Europe so I am on my own. Eeek!
Maybe he will be so tired he'll sleep ( hopefully not on my comforter on our bed)
or maybe he'll just watch the TV I leave on for them when I'm gone.
Maybe I am selling crack ( haha, Libby) and maybe I'm just delusional but no sense in worrying about what I can't stop from happening.
I'm going out. I need a break. Ok, where am I going? To get my nails done. So there.
This is my pamper me day.
Have a great day everybody. Stay warm and dry if you are local. Rest because the snow is coming bigtime on Saturday and Sunday.
Cathy
www.TheMSShoppe.com
Lets do the math...One dog( who likes to get dirty) plus one white kitchen floor ( that already has paw prints on it) plus no supervision equals ( oh no I can't even think about it) a total mess. Mud puppy as my husband has nicknamed him.
What a pessimist or is this a realists? Whatever the case I am worried. I have to go out for a bit and I'm afraid of what I'll come home to. Mark is in Europe so I am on my own. Eeek!
Maybe he will be so tired he'll sleep ( hopefully not on my comforter on our bed)
or maybe he'll just watch the TV I leave on for them when I'm gone.
Maybe I am selling crack ( haha, Libby) and maybe I'm just delusional but no sense in worrying about what I can't stop from happening.
I'm going out. I need a break. Ok, where am I going? To get my nails done. So there.
This is my pamper me day.
Have a great day everybody. Stay warm and dry if you are local. Rest because the snow is coming bigtime on Saturday and Sunday.
Cathy
www.TheMSShoppe.com
Monday, March 23, 2009
Tysabri day, oh yeah !
Today was my Tysabri infusion. I know I must be nuts but I really look forward to it.
Usually the week before my Tysabri infusion I drag a bit but you can see from my previous blog entry that Mark and I went for a walk on Sunday.I also went 2 miles on exercise bike Friday night.
I really look forward to my infusion because I know I'm going to have a great day. I love the hospital where I have it done and it is a fun atmosphere. I always meet someone and we talk.
Today Mark left for Europe so he dropped me off an hour early. I wasn't quite awake so I sat and did Sudoku. You know I'm hooked on my sudoku. It's keeps my brain going. Maybe it's because I went to school to become an accountant and I like numbers.
They were running behind ( so not like them) which means someone was probably late to their appointment and the rest of the day ofthe day was off.
I went for a walk because I had some time and because I was wearing my pedometer and wanted to add to my step total. I think I have become obsessed.
The handi van brought me home ( albeit late as usual) and when I arrived home I was petrified that Ripley was going to greet me covered on mud. It had been raining all morning. He greeted me with a big smile and lots of sloppy kisses. Noelle did the same.
I talked to Mark briefly on the phone and we will talk again tomorrow morning my time when he arrives in Belgium. Europe trips are always the hardest on me because of the time difference. 7 hours. We often are so tired that we get confused who is ahead of whom. I thin kwe have both
called each other at ridiculous times. Oh well.
So 4 weeks from now I will go back for nest Tysabri fix. Yeah !
I can't tell you how much I love this med.
Cathy
http://www.themsshoppe.com/
Usually the week before my Tysabri infusion I drag a bit but you can see from my previous blog entry that Mark and I went for a walk on Sunday.I also went 2 miles on exercise bike Friday night.
I really look forward to my infusion because I know I'm going to have a great day. I love the hospital where I have it done and it is a fun atmosphere. I always meet someone and we talk.
Today Mark left for Europe so he dropped me off an hour early. I wasn't quite awake so I sat and did Sudoku. You know I'm hooked on my sudoku. It's keeps my brain going. Maybe it's because I went to school to become an accountant and I like numbers.
They were running behind ( so not like them) which means someone was probably late to their appointment and the rest of the day ofthe day was off.
I went for a walk because I had some time and because I was wearing my pedometer and wanted to add to my step total. I think I have become obsessed.
The handi van brought me home ( albeit late as usual) and when I arrived home I was petrified that Ripley was going to greet me covered on mud. It had been raining all morning. He greeted me with a big smile and lots of sloppy kisses. Noelle did the same.
I talked to Mark briefly on the phone and we will talk again tomorrow morning my time when he arrives in Belgium. Europe trips are always the hardest on me because of the time difference. 7 hours. We often are so tired that we get confused who is ahead of whom. I thin kwe have both
called each other at ridiculous times. Oh well.
So 4 weeks from now I will go back for nest Tysabri fix. Yeah !
I can't tell you how much I love this med.
Cathy
http://www.themsshoppe.com/
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